Haemophilia is a rare but painful, fatal and incurable disease. It can be medically maintained and patients can live a full life by following a few rules.Hemophilia (also known as haemorrhage) is a rare, congenital, lifelong disease. Patients who live with this experience a reduction in coagulability and therefore, when injured, bleed longer than healthy people. In severe cases, patients may also start bleeding without any external influences.
The cause of blood loss is that the patient lacks some or all of the white (so-called blood clotting factor) in the body that is essential for the process of blood coagulation the right way to go.
The most common cure for bleeding disorders is the Von-Willebrand syndrome, it affects around 1-2 percent of people. Symptoms: kцnnyы sebezhetхsйg, lбnyoknбl the menstruбciу sorбn the bх vйrzйst erхs (akбr abnormal) gцrcsцs fбjdalom kнsйri frequent нnyvйrzйs, orrvйrzйs or intestines mentйn kialakulу vйrzйs the vбgott wounds esetйn hosszъ time fennбllу vйrzйs and greater foghъzбskor or almond eltбvolнtбsakor vйrvesztesйg, possibly more rush.
In small children with haemophilia, attention should also be paid to small bruises
Both are gender-specific, meaning that a sick male can be either healthy or sick, and his daughter is healthy or conceived, so that only the next generation can have the cancer, the next to be affected. In addition to fatalities or fatal bleeding associated with surgery in childhood, the most serious form of the disease is spontaneous and muscular lesions they occur, not infrequently kidney bleeding, but less frequently other internal organ bleeds (gastrointestinal, nervous system) can occur - watchdog.com.
However, you should also know that haemophilia rare disease: the incidence is 1: 10,000 and the incidence of severe haemophilia is 1: 16,000. In Hungary, there are close to 3,000 people suffering from bleeding disorders, most of whom are von-Willebrand patients and haemophilia A.
The disease is not curable but can be maintained. An attentive and well-prepared environment, especially for a young child, is very important. The little ones can have the same full life as their peers - with a few rules. To treat the disease today modern medicines are available to enable you to lead a normal lifestyle. In addition to ongoing therapy, it is also important that those affected (children, family, ward, kindergarten, school) be prepared for situations in which the patient should receive medication for spontaneous blood in spite of the treatment. Thanks to the right medicines, even young people with young blood disorders can live, work, travel and exercise almost full lives today.